For those breathlessly awaiting an update… I had a kernel and libc patch applied to the Ubuntu install on my laptop — usually a kernel update and without fail a libc update would completely FUBAR my laptop and often meant it was easier to reinstall Ubuntu. Eight months ago I suspected it was my hard [...]

There’s a huge cicada on our porch. Hey, I thought I heard them outside, I just didn’t think they came this far north. Evidently they do on rare occasions. Of course, I sort of am repelled by it, feel bad for it, and want to feed it to the turtles. There you have it. Busted. [...]

Hey, guess what? I don’t have MS or a horrible brain squenching tumor made of tooth enamel! For some reason, everyone still thinks that sort of proclamation doesn’t sound completely lame to a patient in this boat. I know there are many patients in similar larger boats. Not me, it is clearer than day that [...]

So I’ve been meaning to update you fine folks, but the universe has been especially indifferent about things here. This means a couple of things: I feel crappy and most of the time by the time I boot the laptop I either make no sense or I can’t remember why I did so to start [...]

I couldn’t take it anymore. My hairs, the little stiff prickly pointy ones that shouldn’t have been reaching my ears, eyes, nose and mouth but were, got to me yesterday. I asked Mr. Shoe to get some clippers. He was mortified by the one inch comb setting maximum. I was two inches from taking the [...]

My hair is doing another massive migration (to the floor, drains, and doggy intestinal tracts… hey, you asked. Wait, you didn’t. Sorry.)  It isn’t too surprising based on history, what we kinda know now, and the fact that there was a surgery that was pretty frickin’ major in the middle of an event that in [...]

First, the cool tech: I am posting from my shiny new (fingerprint covered, new) Motorola DROID phone. It is great with voice recognition, especially if you speak more clearly than I do. The keyboard isn’t what you’d call wonderful, but it has both physical/virtual input, which precious few smartphones have. Still, keeping it short. I [...]

Been an interesting few days or so… It had seemed as if the desmopressin was a little erratic. I mean, I always thought it felt that way, but I know it’s more that I’m erratic with the whole antidiuretic hormone vasopressin cycle. It didn’t last long (only about five hours, when it should do 8-12) [...]

…the other half is waiting. I called the neurologist yesterday, and was actually sorta surprised he called back. I was pretty sure he was implying that he was putting my case through MGH’s clinical conference thingamabobs, which are once a week deals, and I had no idea exactly how long that would take to get [...]

I’m going to give a little ring to the neurologist next week, not because this is taking unexpectedly long (I mean, they’re going through everything, discussing what the local neurologist thinks, what they think in light of it all at MGH, and then suggesting tests and forging plans ahead — I mean, I know they [...]