Category Archives: Living with

Silly Mortal, Easy is for… Other Silly Mortals

Posted on January 18, 2011 by shoe

I went for the four week follow up at Dana Farber on Friday, which was good. By good, I mean, I was really incredibly grateful to be there, because for the past week and a half, I felt pretty crappy, … Continue reading →

Posted in Langerhans Cell Histiocytosis, Living with, Not Otherwise Specified, The Bad, The Ugly | 1 Comment

Things That Go Duh in the Night

Posted on January 11, 2011 by shoe

There are things you just shouldn’t feel dumb about doing but you just do. For instance, through some weird inexperience on the part of the scheduler (at Dana Farber) and the schedulees (us) my follow up appointment was set for … Continue reading →

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Wheels on Fire…

Posted on January 2, 2011 by shoe

It seems whenever I sit myself down to actually do something more than one of these little posties here, something bursts into flame elsewhere on my computer. Usually, it’s my browser, and usually, I have saved along the way. Sometimes, … Continue reading →

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The Best Laid Plans…

Posted on December 31, 2010 by shoe

I’ve been trying to get some stuff up here, but alas, it seems like I either have some massive technical issues pop up, or my attention gets lured away. I also wish I could say I felt better in any … Continue reading →

Posted in Getting to the Point, Langerhans Cell Histiocytosis, Living with | 1 Comment

Divergent Journeys

Posted on December 22, 2010 by shoe

…actually, there’s a Barenaked Ladies song that refers to divergent journeys, that we may meet again in hell. Naturally, this isn’t what I mean, but it’s one of those things that sticks in your head. Prior to getting the LCH … Continue reading →

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A Real Update, Sort of

Posted on December 21, 2010 by shoe

We’re now pushing a week with the prednisone/prilosec plan of attack. I just started the antibiotic last night. Evidently there’s a sulfa drug that is used more often for this sort of thing… but it strikes me as exceptionally odd … Continue reading →

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