Category Archives: Langerhans Cell Histiocytosis

Things That Go Duh in the Night

There are things you just shouldn’t feel dumb about doing but you just do. For instance, through some weird inexperience on the part of the scheduler (at Dana Farber) and the schedulees (us) my follow up appointment was set for … Continue reading

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Those Drive By Posts

I have indeed been meaning to update more (and I did get a little page up earlier), but the sad fact is, I look better than I feel, and man, I look kinda ass like today. I kinda have for … Continue reading

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Wheels on Fire…

It seems whenever I sit myself down to actually do something more than one of these little posties here, something bursts into flame elsewhere on my computer. Usually, it’s my browser, and usually, I have saved along the way. Sometimes, … Continue reading

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The Best Laid Plans…

I’ve been trying to get some stuff up here, but alas, it seems like I either have some massive technical issues pop up, or my attention gets lured away. I also wish I could say I felt better in any … Continue reading

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Divergent Journeys

…actually, there’s a Barenaked Ladies song that refers to divergent journeys, that we may meet again in hell. Naturally, this isn’t what I mean, but it’s one of those things that sticks in your head. Prior to getting the LCH … Continue reading

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A Real Update, Sort of

We’re now pushing a week with the prednisone/prilosec plan of attack. I just started the antibiotic last night. Evidently there’s a sulfa drug that is used more often for this sort of thing… but it strikes me as exceptionally odd … Continue reading

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Wait, Did You Get a New Sweater or Something?

Something looks different here, huh? Bear with me, I’m trying to switch some stuff around and hopefully re-vamp a few things here and there that might make life easier for everyone. Okay, mostly me. But as you can see, things … Continue reading

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How Deep is Your Stupid?

Mr. Shoe and I were sitting in the waiting area in the lower level of the Dana Farber main campus, and I turned to him and said, “As long as it wasn’t caused because I thought too hard about breathing…” … Continue reading

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About Face (Crash Crash Crash)

Forgive my shortness, but I need to share this. I know why I actually liked the idea of lymphoma. Why? Because sometimes it just kinda sucks to be a special little snowflake. Like, when it comes to health. Guess who … Continue reading

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Today is the Greatest Day I've Ever Known…

Okay, not exactly. Today is probably one of the weirder days I’ve ever known — and you know I’ve had some real zingers for comparison. Fortunately, I can be reasonably sure I will not need a cab ride today. I’ve … Continue reading

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