Category Archives: Langerhans Cell Histiocytosis

I Know But I’m Not Gonna Tell…

I know, everyone, brace yourselves. It’s an update. I… forget completely where I was in this whole extended timeline when I last wrote and the truth is I’m a lazy ass and I’m not going back to look. I know, … Continue reading

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It’s ALIVE!

…or it’s a lie? I don’t know. Know what totally sucks? Well, several things, but the main one being I went to write something here and the computer’s on and I’ve no damn clue what it was I wanted to … Continue reading

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I Visit Once a Month

Hehehehe. This is why you can’t take me anywhere. So… run down of the past month. We were invaded by Germany. Yeah, and so that happened. Then, I was taking Lola out because she smelled funny (as is the case … Continue reading

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I Suck at Updates

I guess we all knew that. Shrug. So, when we last left me, I was coughing. Guess what? Still coughing. I saw the lovely folks at Dana Farber last week. It’s kinda funny because Dr. J asks (I mean, he … Continue reading

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Design Flaws

I have never been great at coming up with titles or headlines. Sometimes, however, things just lend themselves a title. That’s great. Other times, I just look around and shove a title on things based on what’s in front of … Continue reading

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Oh, Joy!

Just noticed it’s supposed to be 99F on Saturday. Who says you need to die to go to hell? I am doing one of these annoying blankety updates because… well, I don’t get around to this much and then when … Continue reading

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Up Your Nose!

Damn, I suck at updating. Yeah, well, deal. I saw the (decidedly non-batshit crazy and very good) gastroenterologist. It’s really funny when specialists seem young to me. When he did the endoscopy (more on that) he actually hadn’t shaved (maybe … Continue reading

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Small Parts, Choking Hazard

Some people resolve to write more. Not me. I know that I’m doing pretty well at this point (one way or another) if I manage to update this once a month. So a lot of stray thoughts here. We had … Continue reading

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No, Really, I’m Done!

This past week has been a friggin’ annoying one with a particular specialist calling and rescheduling appointments, and then needing to reschedule the rescheduled ones. I guess the good news is (ah, why hide it?) is that it was my … Continue reading

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What the…?

It’s been an interesting week. Yes, yes, indeed. First, I had a video swallow/modified barium test. I will never voluntarily eat a Vanilla wafer or vanilla pudding again. I’ll get to that… Yesterday, though… Mr. Shoe took a photo because, … Continue reading

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